We've been in this room now for 4 weeks! Yesterday was a good day for her. We had visitors from home yesterday!! It was so nice to have someone from home visit us. They happen to be here on vacation and stopped in to see Mz Mimi, it was her former bus driver, Mrs. Cindy and her husband Mr. Sammy is Marshall's current bus driver!!I didn't think about it but I should have taken pictures. Any way before they got here Mimi had to go down and do another CT scan of the lungs. Which showed great improvement with the fluid around the lungs but there is still the spots on there, still waiting to hear anything on them, hopefully when the doctors come back around and see us they will know a little something. She is till having fevers mostly at night now so that is some what of an improvement. When she got back in her room yesterday PT came to see her and she road the trike around for the PT and then did some basic stuff to wake up those muscles and joints. Then she sat up in her room on the sofa and visited with her company then when they left she stayed on the sofa and watched Now and Then. Then she had to take some meds and after her meds were done she was able to be unhooked from the pole and she went down to the gift shop and did some shopping! Woo Hoo for her.
My dad stayed with her last night and I went for a good night sleep at the RMH! I got up early to be back at the hospital cause today is day +21 and that means a bone marrow biopsy to see how much of her donor cells are in there working and doing it's job! We pray for 100% but know that at 21 days that is not likely, but this is the crucial one to see if the transplant is taking! Meaning is this her on marrow or all the donors working...this is where we want to see just the donors in there working.
She did great for the biopsy, it was done in peds sedation and though I usually don't wanna be in there with them doing it this time they just kind of started with me right there...I had to look away..it just kinda makes me sick to my tummy.
When we got back to the room the doctors stopped by doing their normal rounds and said that her CT scan from yesterday which was read by the radiologist looks all clear. So the spots on the lungs may just have been some fluid starting in there! yay we hope and pray they continue that way and she continues to heal in all directions. Right now there are a few thing we need to work on before we can talk about being discharged, one is switching all meds to oral meds, second we need to be eating and drinking a little and most importantly we need to be fever free!! That is our biggest hold up right now is the pesky fevers and no one know why or can figure them out...they just keep saying it's normal around here!! Just a bummer! Her counts for today with out the GCSF were really good...
6/16 (Thursday counts)
WBC 5.0
ANC 3.9
HGB 9.1
platelets 14
6/17 (Friday Counts)
WBC 5.8
ANC 4.5
HGB 9.2
platelets 36
Hope you all have a wonderful weekend. Blessings.
Forever in His hands,
Kelly
Thought for the day:
Life is like a game of cards. The hand that is dealt you represents determinism; the way you play it is free will.
Jawaharal Nehru
My dad stayed with her last night and I went for a good night sleep at the RMH! I got up early to be back at the hospital cause today is day +21 and that means a bone marrow biopsy to see how much of her donor cells are in there working and doing it's job! We pray for 100% but know that at 21 days that is not likely, but this is the crucial one to see if the transplant is taking! Meaning is this her on marrow or all the donors working...this is where we want to see just the donors in there working.
She did great for the biopsy, it was done in peds sedation and though I usually don't wanna be in there with them doing it this time they just kind of started with me right there...I had to look away..it just kinda makes me sick to my tummy.
When we got back to the room the doctors stopped by doing their normal rounds and said that her CT scan from yesterday which was read by the radiologist looks all clear. So the spots on the lungs may just have been some fluid starting in there! yay we hope and pray they continue that way and she continues to heal in all directions. Right now there are a few thing we need to work on before we can talk about being discharged, one is switching all meds to oral meds, second we need to be eating and drinking a little and most importantly we need to be fever free!! That is our biggest hold up right now is the pesky fevers and no one know why or can figure them out...they just keep saying it's normal around here!! Just a bummer! Her counts for today with out the GCSF were really good...
6/16 (Thursday counts)
WBC 5.0
ANC 3.9
HGB 9.1
platelets 14
6/17 (Friday Counts)
WBC 5.8
ANC 4.5
HGB 9.2
platelets 36
Hope you all have a wonderful weekend. Blessings.
Forever in His hands,
Kelly
Thought for the day:
Life is like a game of cards. The hand that is dealt you represents determinism; the way you play it is free will.
Jawaharal Nehru
1 comment:
Wow, that sure sounds like a busy day!! Way to go riding the trike and walking the halls - building up your muscles for when you get set free! Those cells rock and I am praying that the BMA/BMB show only new cells growing! I will also pray for those fevers to go away for good!! You are a rock star Amelia!
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