We all had a great time in Disney World. It was a full fun week. We celebrated Amelia's two year post transplant having a wonderful day at the Magic Kingdom, riding all the rides! It was a wonderful week, but now back to reality and back to the world of doctors and doctor appointments. When I say appointments I am not kidding you, we started the month of June with Ty's MRI on the 5th and from there things just spiraled. He had his MRI (on the brain) done at 8:30 that morning and by 1:00 the doctor was already calling him. I was at the doctor with Marshall, when he called to tell me. We weren't expecting results till at least the next day or later, but obviously something was wrong for her to call so quickly. He has a 3mm cyst in the brain, well I think it's more in the pituitary gland, he wasn't quite sure what the doctor had said, he half listens. I've made an appointment with a neurologist for June 25th and hopefully we will know more from there. He will also need to see a hematologist as his iron level is extremely low again! This is the 3rd time in about 3 years. There is something going on there and no one can seem to figure out why this is happening, this time they caught it before it hit 0. It was at 16 and a the range is 20-300 so he is below the range and point of concern. Marshall was at the doctor for his shoulder and now has to have therapy for a frozen shoulder, I went to the doctor on the 7th for Achilles tendinitis. He put me on steriods and after two day of them I am feeling 100% better!! Amelia will go to our local hematologist on the 18th to start her 2 year check up and her, hopefully, last bonemarrow biopsy ever!
Speaking of Amelia, she celebrated her 13th birthday on Friday! Yep it's official I have a teenage girl!
here are a few more pictures from our trip....
Well I hope to hop on here again soon to give another update of everyone's health. For now we appreciate prayers, thoughts and good vibes!