Greetings,
We had the mother of all days today. Ty had a training day today so we had to scramble to get everyone taken care of..My mom and dad took Amelia, Nathan and I over to
Ochsners for her appointment. Well the day started off with an unexpected stop! As soon as we got off the causeway (24 mile bridge
for my northern followers that was stop and go traffic hell in itself ) Nathan had a funny look on his face as no sooner I had asked him if he was OK...he threw up all over himself! No extra clothes after all he is 6 and we haven't had extra clothes with us in quite some time. So I told my dad to get over so we can get to Kmart to buy him some new clothes to wear...oh joy. Me the
bargain hunter got lucky and found him a really cute set with Cars on it for three bucks, my kind of deal!! Any way get him changed and get on our way again and still manage to make it to the doctor for 9:30 exactly!
Things go great at the doctors visit, find out that her platelet count is 35 (
WOOOOHOOO for that) Doctor gives me a pat on the back for knowing what I am doing with her and this disease....which what he was talking about is that he has had FA patients before who did nothing to try and save there
child's life they
buried there head in the sand and refused to do a Bone marrow transplant...I really like Dr
Ducos and I like that he listens to me and respects the fact that I do "know" what I am doing and that I stay on top of things with FA! So after a little discussion with him...we talked some about
androgens and he help put my mind at ease that I am making the right
decision in NOT putting her on them...there is just not enough data out there on their long term side effects and the out come of transplant after being on them.
So off to the hospital we go, we got Amelia checked in at the Pediatric
IC unit and get Nathan settled in the sibling play room...they asked if she wanted
Versed to help calm the nerves....BIG mistake, only we
wouldn't find this out till later. Any way long story short...Tried to get an IV started. This child is the hardest person ever to try and get an IV started on . They couldn't use any in her arms because they were all still blown from Tuesday when we tried to get blood drawn!!!
Uggghhhhh So they tried of all places her feet 4 sticks and about an hour later that was it just stop sticking her! Everyone agreed the OR would be the place to do it....problem is we need to wait till her veins get better and they have to
schedule it.....so another trip over there and probably two days missed of school!
Needless to say at this time it is about 2:00 and none of us have had anything to eat...so we
are all starving. But the "funniest" thing was Amelia on the
versed...let me just say it doesn't agree with her...she was mean and trying to kick me, she was screaming and crying, I am so glad that it has worn off and she is back to her sweet little self!!
Now I have a massive headache and I think I'm gonna go watch some TV with my little ones!!!!
Then I took a bag of frozen mixed vegetables sauteed it with an onion and some garlic ( just mainly to warm it up)
Then added a can or two of cream of chicken soup! (Just the soup no other liquid you want it thick)
The added the chicken into the veggie mixture to warm it up and then threw it into a casserole dish.
Now for the topping I made a mistake and bought Filo dough (that's what happens when you take the hubby and 3 kids to the grocery store you get distracted!!) What I should have bought was puff pastry dough ( in the freezer section of the grocery store!)
Don't cha just love our fine china??? hehehe 
