HAPPY BIRTHDAY AMELIA!!!!

Well it is officially June 7th..so that means it is Amelia's birthday.....Oh my how time flies, I can't believe it has been 9 years ago since she enter the world. She enter like a ball of fire as she is still that today!

She is my true angel, she is my world and there is not a single person that she meets that she does not truly touch their heart in some way. I could not be prouder of her she is the best child anyone could ever ask for, her heart is a big as she is....

Amelia Angelica Bennett entered this world at 8:33 am on June 7, 2000...her name Amelia means hard working, and Angelica means angel like...so she is our hard working angel!

So here's to you my sweet baby girl...Mommy and Daddy love you more than life it self and our prayer for you this birthday is that you have many many more!

HAPPY BIRTHDAY MIMI!!!! (my mini me)

UPDATE...

Ok as promised, I'm getting back here to update on Amelia and Nate. Picked them up from VBS, which I must say they are have a blast at and in a few week another church across from ours is having VBS with a crocodile theme and Nathan saw that on the way to the doctors today and went wild! He is ready to go there. Any way I brought them to McDonald's after for a little lunch. I ran into a friend from Jr high school, it was great to catch up.
Anyway to the doctor we went...she is too sick to get a vein stick to check platelets this week...we did do a finger stick and her platelets were still 27, we will wait till next week and get her blood work done if she is better. The verdict on her is that she has that stupid sinus infection again that has moved into both of her eyes, poor thing has such a hard time seeing in the morning. Her eyes are usually swollen shut...but once I put the eye drops in she is usually OK.
Nathan is not as bad as her..yet, Dr. Casey gave me some Rxs for Nate but said to hold on to them and if he gets worse then fill them. His immune system is up to par and should be able to fight this off better than hers.
It is also that time of year, the time that I dread the most!!! I need to contact Ochsners and see if they still have a hematologist available to do her yearly Bone Marrow Biopsy, we are going to do it some time in July this year that way she will have time to heal from it before school starts. I need to start working on it now though as some of her marrow needs to be sent to Minneapolis and they have to coordinate with their lab. I am just praying that they still have Dr Ducos for us, because I really don't feel like: A) going to Children's hospital...or B) taking a trip to Minneapolis...because if that is the case I AM NOT DRIVING!! Maybe Mimi and I can make a girls trip and fly just the 2 of us, although I know that dad won't be happy with that as he hates to send us that far away with out him to be there for both her and I! But I'm getting a head of my self so I will start next week with trying to set that up here...With all the new research that has just come about in FA research where they are using the patients own skin cells for transplant, Of course it is still a few years out....But I pray there are no abnormalities in her marrow and NO CHROMOSOME 7 abnormality!!! I need to keep thinking happy thoughts, and keep her here for as long as we can!! I still hope and pray we don't have to go to Minneapolis for the winter!!!
I also try very hard not to think about the ever present obvious, the seriousness of her disease and how dangerous a transplant is especially for her as she is so tiny and only has one kidney...you will never know how my heart aches, I just can't imagine my life with out her. I have accepted that, that is a possibility, but of course I am not prepares nor will I ever think I will be prepared for it...
Anyway I think I have rambled enough for tonight...but sometimes you just gotta let it out. So please keep her in your prayers, that she may fight this infection and that it doesn't bring her counts down any lower!!
I would like to try and promise to update again soon, but I have learned not to promise anything...I will though try my best to update on Saturday as Sunday is Amelia's 9th birthday!!!I cannot believe she is 9 already where does the time go?


PS I also hope to be back with Tasty Tuesdays soon too! and some new pictures too....

Neglect

I know that I have neglected this site and I promise to be back soon...but for now I need to ask for a little bit of prayers for Amelia...she is going to the Doctor this afternoon and she is not feeling very well at all...she has not been sick in quite a while and this seems to be really bad both eyes are swollen and yucky her throat hurts she is coughing and a yucky nose! And her birthday is Sunday and she wanted to have a pool party, but it doesn't look like its gonna happen!!! I'll up date as soon as I get back with them!

Ssshhhhh don't tell her.....

ok for those of you who don't have FB here is what Amelia does when she thinks no one is looking.......

I'M BORED.....

School officially ends Monday, but for some of my kids Friday was the last day. I mean really who goes to school on Memorial day for half a day...sounds kinds weird to me. For Nathan it ended Thursday morning with kindergarten graduation...I sent him to school looking all dapper and with his shirt tucked in...by the time we saw him this is what he looked like.....

Still cute to me...but untucked shirt...

here is a picture of Nate and his teacher...

I am hoping this video comes out because it was at the end of the program and it looked like he was thinking.."hurry up and get this over with..."

On Friday I returned to the elementary school for third grade awards. It was over by about 9:30 to 9:45, then the two little ones were done with school and I checked Amelia out and she brought a friend home and then I took them to get some Pizza at Pizza Hut. Where we met up with Me and My Gang.

And today is only Sunday...and can you guess how many times I have heard.....I"M BORED!!!!!!!!!! Its gonna be a looooonnnnnnggggg bbbbbooooooorrrrrriiiiiinnnnnggggg SUMMER...God help.......

Child labor....

Gotta start them young!!

Well, things are moving a long for the final week of school, we have a busy week.

Marshall has exams, Nate has kindergarten graduation and Amelia has 3rd grade awards. This is Amelia's last year at the elementary school, she will move to the Jr high for 4th grade next year. I will have all three at different schools. 

On the health front all is quiet, Nate is the only one right now with the yuckies again!!! 

Missing.....

I know I have been missing....
It has been some kinda crazy around here.
I promise though I will be back soon enough. There isn't much to update on...Amelia had her counts done again but unfortunately the good counts didn't last. her platelets are back down to 26, but we are not giving up on the fact that since they rose once they CAN do it again!!!! We are gearing up for summer around here, well the kids are, me not so much. I like routines and well we just don't have one in the summertime!!!!
Oh, Amelia was excited to hear that she gets another wish...
We were eating dinner the other night and the phone rang and it was a lady with the wish endowment fund ( I think that is what she said) and I told her that we had already went to Disney with Make-a-Wish and she said that didn't matter to their organization, she said she still gets one through them and she can go any where she wants and if she wants to go back to Disney that is fine with them, or anything else she wishes for!!! She is so excited...she is thinking she might want to go back to Disney, like for Thanksgiving...I talked to the lady at the wish foundation and said that if we had to go to transplant before then she would have things in place so that if we need to go we could go!
Well it's getting late and my little man needs me to put him to bed.
But I wanted to wish all of the mom's out there that read this blog a very Happy Mothers day to ya!!!!