Grumble, grumble...growl!

Why does nothing ever work out the way we want it too? I guess that would just make life to damn simple! I have in this journey of mine, really tried to learn not to sweat the small stuff. I have tried and am still trying, but that is usually easier said than done.. Of course it is the little things that keep adding up to eventually be a big thing!!! Life is one unending lesson after another.
Ok I am not going to bitch and grumble any more, I'm gonna dig out my happy face slap it on and be a perky little person...you know the one that annoys everyone!

I rescheduled Marshall's Oral surgery, of course it will have to be done while school is in unless a cancellation comes in before then. Our Disney cruise keeps getting pushed back to what now looks like the last week of February. So that means more days of school missed for all of them! We have been waiting on court check to come in since Aug...did they friggin' for get about my husband!! My sinuses are so full of pressure that I feel like my head will explode any minute...but I can't be sick! I am the man and the woman of the house these days! There isn't much that I can't do around here...I may have not known how to do it all but along the way (17 years of it) I have figured out a thing or two. After all, the one lesson my dad taught me and taught me well was to NEVER depend on any one but yourself and there is NOTHING that you can't do if you put your mind to it. Well, like I said life is one big lesson..... The lesson I am trying to learn is how to change to oil in the van. Hell if dumb and dumber can do it, I figure there is still hope for me. I am pretty handy to have around. I have a friend of mine, who I love dearly (hi Susan)but whose husband (Hey Wilt) told me that she will pass up the gas station on the way home, get home and tell him that the car needs gas and he has to go fill it up...she won't!! Oh and yes she is a blond!
Anyway I guess I'm just getting worn down and tired of being the man and the woman. I love my husband dearly and in no way am I mad at him...(I just needed somewhere to vent) It just goes to show you that life is full of lessons, no this is not what we wanted to happen in any way what so ever..no one ever plans an accident other wise it truly isn't an accident. No one plans to have sick kids, but there are plenty out there. All I am saying is the timing in all of this really sucks, but can't change it and need to keep trudging forward. At least I can still count on my husband for a paycheck...for now any way..hoping he's back at work before he runs out of time!

Tomorrow is a half of day for the kids, Nathan gets to where his PJ's to school tomorrow for Polar Express day. He is so excited..that is one of his FAVORITE movies of all times, he watches it every time he finds it on TV...I keep for getting to buy the movie for him, and yep, I've forgotten again this year and can't seem to find it anywhere! The whole school will watch it at the same time and they get to have cookies and hot chocolate while watching it...the teachers and all wear their PJ's too. So cute.
Saturday we have special visitors coming all the way from the North Pole...Yep Santa and Mrs. Claus will be coming to our house for a visit, and yes I will take lots of pictures to share with you.
Tuesday, we are going on a tour of the French Quarter with Make~A~Wish and Macy's. We will stop at the St Louis cathedral and take pictures with Santa again!!
Wednesday, my dad's birthday and the day I take Tyren back to the doctor for hopefully some really good news..... then of course Christmas Eve and Christmas. Busy, busy, busy...just the way I like it. Hopefully I won't hear I'm bored, at least until after Christmas I hope and then I hope they get enough stuff from Santa to keep them busy enough to keep from saying it........

One can hope can't they!


In case I don't get back before then...MERRY CHRISTMAS to all of You...Yeah even YOU!!!

Update

Amelia's Anc was 1000, so that means no trip to New Orleans for a shot of GCSF. We will repeat counts in about 2-3 weeks per Dr. Wagner in Minneapolis. We will keep praying that they will improve. I hate to have to see my baby suffer so! Transplant is not a pretty sight. Its just not fair that kids have to suffer so. Please know that she is not feeling bad know or has it affected her in any way, she is still her feisty little self and still FULL of energy and pep. But I have been through this once with Marshall, I know the scene all to well!

Tyren continues to heal. We will return to the doctor on the 23rd for more x-rays. He is so bored here. He is by no means a homebody or one to just sit around...that is why I think he likes his job so much, always on the go. He is still sleeping in the recliner as it still hurts to lay flat. His ribs are healing and not hurting as bad but they did say those would take the longest to heal. I'm getting spoiled by having the whole bed to myself!

Marshall is home sick, he went to the doctor on Wed. He has a sinus infection, he is on a 3 day antibiotic and starts another one on Monday for his Oral surgery that will be on Wed. We have a very busy next week, I don't think there is not a day that we don't have something scheduled.
It is weeks like this that make me want to run away and be someone else for a while. Busy is OK but this is insane busy. Thankfully I have wonderful friends who help me get out and take my mind off of things!
Can't believe that the year is almost to an end and Christmas is right around the corner. I just want to put the breaks on and go in extreme slow motion.
But not today go too much to do...gotta run literally!!

Just some ramblings again....

Sad to say I got nothing!!! Nothing but ramblings, finally found the cord to hook the camera up to the new computer since our "only two years old" printer won't work with windows vista....ugghhh so I can't upload the pictures that way...and I don't want to put any more on my laptop. So hope fully I will have some peace and quite tomorrow as kids will be in school and Ty is working. Loads of free time here...ummm yeah right the laundy seems to be breading in the utility room as I swear I just washed all of the clothes just a day or so back! But my brain is fried as I have dealt with Nathan most of the afternoon...He has appropriately been named Nater, Nater the terminator!! I have chased him off the counter tops about three times, the top of the golf cart twice and some genius decided to take the knob off of the water faucet outside so he (Nate) couldn't turn the water on...well genius forgot that it is the main to where the water for the house comes in at and well needless to say in the middle of filling up the bathtub the water goes off.... I swear, I'm ready to sell him to the gypsies. My mom and dad call him the quiet chaos. I promise he is not BAD just so damn inquisitive!! He is the kid who takes things apart to see how they work. So I am going to bed now and hopefully will have some pictures up by tomorrow and a story. I tell you we are normal boring people here lately and well I kinda like it that way, because I know all too well the other end and I am not ready for it, not just yet. I keep praying we make it through one more school year before we have to go to transplant. I keep trying to prepare my self mentally, but being through it once already I just don't know that you can ever prepare your self for something like that. Your whole world and life is turned upside down. I try to stay as strong as I can for her sake and never let her see me cry, but the truth is that I have cried my self to sleep more times than I care to think, but I am living my life for her with out regrets. Ty and I have said that we will not have any regrets when it comes to Marshall and Amelia. If and when the time comes that they should leave us, we want to know that we did everything possible for them to have the best life that they could have and have no regrets, no, we should have done this or that. It is what it is!
Well I said I had nothing but ramblings tonight as my mind seems to do that a lot lately. I'm just trying to get through one day to the next.

No Excuses.....

Ok, I know, I have been missing and I have no excuses, none that are good anyway. We have just been living a "normal" life well as normal as it can be for us. It's been kinda boring here, and I truly mean that in a really good way.

I have been going to the gym every morning and the kids well have been going to school and the hubby is back at work. Not too many doctor appointments, but next month it will be non stop, for Marshall anyway. We are going back tomorrow to see the allergist to see about starting allergy shots. Then he has an endocrinologist appointment with a new doctor to see why he is gaining weight so much so fast!! A little over 30 lbs since Feb. He is up to about 154 lbs, then we have some neuro-psych testing to hopefully help the school and see how he thinks and processes his thinking, to see what kind of damage there may be from both the brain hemorrhage and the stroke during his bone marrow transplant.

I promise I will try to do a better update soon one with pictures. But I will be busy the next few days we have Halloween, bridal showers, birthday parties..... so much to do and I promise to take lots of pictures of Amelia and Nate for Halloween. Amelia is going to be a witch...Nathan, well we are still not sure what he is going to be. He wants to be a knight or a power ranger. We shall see.....

Updates.....

Greetings,
Well the weekend was nice, but I'm glad that it is Monday morning...I'm sure all you SAHM's know what I am talking about. (Wink, Wink.....)

Anyway, to the Eye doctor we went on Friday, well first Amelia's eyes have improved a great deal. She does not need glasses, she was disappointed, she wanted some...go figure, Marshall on the other hand who needs them doesn't want them. His news was 50/50. While his eye site is improving....can you shout it with me....NO MORE DOUBLE VISION!!! A horrible side effect from the stroke he suffered during transplant 5 years ago. BUT, come on you knew it was coming didn't ya...you had to have know there always seems to be a but. OK first, his eye site is improving too, if he would just wear those darn glasses on a regular basis. ( He hates them and thinks he looks like a dork with them....not the truth) They are helping his eyes steadily improve, and hopefully one day he won't need them anymore or at least not all the time!! Here is where the but comes in...here lately he has had to be put on a lot of inhaled steroids and a few steroid shots and some by mouth (not for long about a week for his Allergies and Asthma) What we discovered as we were at the eye doc is that all the steroid use has started cataracts in his left eye. You use something to help improve one thing and then you get another side affect!!!! UUUUGGGGHHHHHH!!!
We have an appointment with the allergist on the 16th for quite a few discussions...first, I think he is on way too much inhaled steroids , I think they are the cause of a lot of side effects like...weight gain, moodiness and now the cataract. His weight has climbed here in the last few months, we are going to also go to the pediatrician to see if she can check his thyroid and see if that could be some of the problem. He weighs 150lbs. I just pray that they can get to the reason for the weight gain.

Well I have to run we made the mistake of getting out the Halloween decorations and well it looks like someone threw up Halloween all over the livingroom.

I don't have a recipe for Tasty Tuseday...I'll keep looking though.....

Blessings,