Alleluia, Alleluia.....AL LE LU IA!!!!!!

We are singing here loud and proud!! The local doctor here finally got on the same page as the doctor in Minnesota. Last Thursday we went for Amelia to give blood for a CD4 test that needed to be above 100 in order for her to go back to school. Well we got the results on Monday and they were well over 200....so guess who went back to school on Thursday.......

This smiling beautiful girl!!! Also guess who tried out for the junior High Cheerleading team and made it....this beautiful smiling girl!!!


God is AWESOME!! hard to believe where she was just 10 short months ago.....

Busy, busy.....busy.....

Greeting Friends...
it's been a while since I have last updated. Things are still rolling right along. We have had lots of doctor visits over the last few days/weeks and a few to go, but they are NOT for Amelia and that is a great thing. We went Tuesday to the hematologist for Amelia.....We all could not be more pleased with her and how well she is doing. Her counts on Tuesday were WBC: 3.8, HGB: 13.2 and her platelets were 114. I have to call on Monday to get her IGg levels, praying that they are above 400! The issue of school also came up again and we asked, WHEN! Our local doctor said he wanted to give the docs in Minneapolis a call and get there thoughts on this too. He said since he wasn't the only doc taking care of her he wanted to see what they thought. I pray that I here from them before our next appointment which is on April 10th, she really needs to be back in school around kids her own age and her friends. Please say a little prayer that she will make it back there before the end of this month!!!! Here is a picture of her hair, it is growing back so nicely and when she lets me fix it, it is really REALLY cute!


The other doctors that we have been visiting are for Marshall and Ty. Marshall went and had more cell's remove from a precancerous mole about two weeks ago. Tuesday we go back to have the stitches removed. He also needs to see the eye doctor on Friday and then IVIG the following Tuesday and then the Tuesday after that he will be going to a GI doctor to check on his gallbladder and acid reflux. They think more than likely he will need his gallbladder taken out. I know that it is usually a quick and easy procedure now a days, but if he needs it out I think I will wait till the summer when he is out of school and I have more time on my hands....
Ty also had eye surgery on Thursday, he had a lazy eye that was getting worse and making it harder for him to see. So Thursday they went in and tightened the one muscle and on the other side they had to loosen the muscle. Lets just say he is not a happy camper. He is hurting and the eyes are burning and feel like they have tons of sand in there. I have a few pictures, they aren't the best because I couldn't get his eyes to open anymore than they are with out them causing him a lot of pain

Here it is before the surgery, this picture is not as bad as it really was.






So that is what we have been up too around here. Hope to be back soon with more to update on!

Blessings and thanks for checking in on us and thanks for keeping us all in your prayers!

Finally....

OK here it is, I had planned on doing this update late last week, but then we found out that our friend Sammy was not given much time to live as his leukemia had returned, very sad and heart breaking. Sammy gained his angle wings on Saturday. Please keep his parents in your prayers, they are amazing people!

So here is our little update. Amelia has been doing really well, she will be 9 months post transplant next week on the 27th. her counts are doing fairly well too. She is bored and wanting her counts to be high enough for her to be able to go back to school for at least half days, in secrete I want that for her too! she needs the socialization...she is a little butterfly. Her doctor here is extremely cautious, Amelia would say a little too Cautious!! She is planning on trying out for cheer leader at the end of March.

On the health front, Marshall has been leading the pack! He has an ear infection, and it doesn't want to clear up so we will be making an appointment with the ENT. He went to the dermatologist and had two moles removed and one of them came back precancerous, so next week he will go back and they will have to cut more cells out. We will need to check them out regularly now. He has also been having some issues with his liver levels coming back elevated, so we went to the hem/oc. He is sending us to a GI doctor. Marshall had an ultrasound of the abdomen and his gallbladder is still full of gallstones. They have been there since after transplant and for a few years it would flare up, but it hasn't flared up in pain since some time in 2006. I guess we will see what the GI doctor says. The hem/oc doctor feel that it is causing the increase in the liver functions test, so they are thinking that it will need to be removed. We will see in the upcoming weeks. We also have to go back to having his IVIG done monthly.
Ty will be having eye surgery one March 8th. They will be tightening his left eye muscle so it won't be wondering!
So there is a lot going on, so we will be very busy over the next few weeks!
Here are a few pictures of Amelia's hair it is getting thick and very curly! I will have to get one of how it is normally, there are from a day i talked her in to letting me use the flat iron on it




Well gotta run early day tomorrow as it is Mardi Gras here and I am going to take the kids to the parade for a little while tomorrow!!
Hopefully I will try to update of just plain ole blog a little more often!!
Blessings!!
Kelly

Update coming soon I promise!!

Is there really anyone out there who still even reads this? Well if you do I will be doing an update soon.... But would like to introduce you to the newest member of our family.......

Meet CoCo....

She is an 8 week old Yorkie and she is adorable!!!

Caps For Kids

OK so most of you have heard of Caps For Kids. Well if you haven't, you can read about it here Caps For Kids. What most of us know is that our kids pay a $1 to wear their favorite hat to school on a designated day, which is true. They also look for kids with terminal illnesses to honor with a signed cap from some one famous. Well Miss Amelia was nominated and chosen to be honored with a cap of her choice. Her first choice was Selena Gomez, but unfortunately they didn't have one by her, but they said they would work on getting her one signed by her. Since this was on a Monday that she chose and she was getting it on Thursday she went with a second choice that they had in stock. Here she is at the school board meeting waiting.



Here are the people from Caps For Kids! Super nice too I might add.

This is her principle presenting her hat to her!






and here is her cap! She watches/watched NCIS a lot with her papaw, especially during transplant and this is her absolute favorite character on the show.......

Pauley Perrette!!
She was super excited about it and has been showing off her hat all over! SHE LOVES IT!!

We had clinic on Monday and everything is still moving in the right direction. Counts are still doing awesome and we have one more week till we are completely off the CSA!! She should finish it up on Jan 26th (her daddy's Birthday). Then in a month after that we will test her immunity counts again and if they are good enough she will go back to school in March for half days.

Thanks for the Prayers...

Thanks every one for the prayers! Amelia is doing much better and thankfully it only lasted a day and a half. She did not have to be put in the hospital. We went to the clinic and saw the doctor and if she wasn't doing better by 5 she was going to the hospital. She had a clot that was stuck in the urethra tube that she was able to finally pass it and pee all on her own. Thankfully it passed and we went home that evening drinking a water bottle full of water every hour and half till bed time. Friday we went back for an ultrasound of the bladder and thankfully it was all clear. I am praying that it will stay that way for ever and that this stupid stuff NEVER rears it's ugly head again! Her counts are great, her hemoglobin is 12.7 and platelets are 138 and white cells were in the 4 point something. We will return to clinic on Jan 16th and she only has two weeks left to go on her immune suppressing medicine and then we will check to see how her immune system is doing and if it is better she will return to school for half days in the mornings. I think she is looking forward to doing this!
Again thanks so much for your prayers! She is a very tough cookie and keeps trucking a long!
Blessings,
Kelly

Welcome to the flipping New Year

Prayers, please! We are headed to the hospital with Amelia!! After 3 and half months with no blood, guess what reared it's ugly head again!!! Yep she is having blood in her urine and clots, we are all devastated. Please say a prayer or two for her! No body knows why this is happening! All I can do is beg for prayers!!!